We Are People With Parkinson’s Shaping the Future of Parkinson’s
Helping, Not Helpless™
Resolve Parkinson’s is an international group of advocates with lived experience of Parkinson’s. We are dedicated to using our knowledge and patient voice to bring about systemic change in how Parkinson’s is both identified and treated.
Are you living with Parkinson’s?
Are you a Care Partner for someone with Parkinson’s?
Are you a Patient
Scientist?
Are you a Researcher or Clinician?
We believe there is an urgent need to create a new paradigm for treating and curing Parkinson's Disease.
Here's why:
The number of people in the U.S. with Parkinson’s is increasing. There are 11 million people with diagnosed Parkinson’s Disease. That number will be 22 million in the next ten years. Young-onset patients (under 50) have doubled in the last ten years.
We still lack basic knowledge about what Parkinson’s is, what causes it, how it progresses, and how to prevent it despite the $3 billion which has been invested in Parkinson’s research over the past 25 years.
The most widely used drug treatment is 50 years old and does not cure or stop the progression of the disease.
As patients with Parkinson’s ourselves, we’ve been told by the medical community that “nothing can be done.”
We refuse to accept that nothing can be done.
Our Mission
The current system of care for people with Parkinson’s is not working.
We see deeply entrenched, systemic problems that stand in the way of diagnosing and treating this devastating disease, and we’re committed to solving these problems to create changes that will transform the future of Parkinson’s.
Our Goals
Creating a New Model
By engaging the scientific, health research, and medical communities to collaborate with Persons with Parkinson’s and one another, we will shift both perception and practice to advance the prevention, treatment, and cure of Parkinson’s Disease.
Elevate the Parkinson’s patient voice
Engage and use the power of the voice of people with lived experience of Parkinson’s to make their perspectives visible, raise awareness of systemic problems, and advocate for positive change.
Improve and reform the Parkinson’s system of care
Reform the system of care for Parkinson’s to enable the disease to be managed as a chronic condition by early identification and whole-body, multisystem intervention, if not prevented or cured.
Embrace a new model of Parkinson’s disease
Foster creativity, out-of-the-box thinking, and intense questioning of current suppositions about Parkinson’s. Embrace a new model of understanding that includes underlying physiologic, as well as metabolic and ecosystem changes.
Your Voice Matters
We want to hear from you. What are your hopes, your struggles, your ideas?
We need your voice to help change the future of Parkinson’s.
Are You a Patient with Parkinson’s?
Are you frustrated by the lack of progress in research?
Do you struggle to find competent care?
Contribute Your Voice
Are You a Family, Friend, or Care Partner for Someone with Parkinson’s?
Does someone you deeply care for struggle with Parkinson’s?
Have you watched the slow but inexorable decline of a loved one? Have you lost a family member or friend to Parkinson’s?
Share Your Experience
Are You a Patient Scientist?
Share your unique knowledge as both a scientist and a Parkinson’s patient. Connect with the N=1 community and join our Science Advisory Group.
Increase your work’s visibility
Are You a Researcher or Clinician?
Work with us to reimagine an early critical path for Parkinson’s that elevates the voice of those with the lived experience of the disease.
Join a collaborative learning community with the goal of articulating a new paradigm for Parkinson’s.
Join Our Research Community
Join Us in Making Parkinson's Voices Heard
Resolve Parkinson’s, in collaboration with citizen scientist Martha Carlin, is on a quest to amplify the voices that often go unheard.
We are looking for individuals who are willing to share their personal stories, observations about symptoms, and insights on managing Parkinson’s.
The stories and experiences shared will be part of a documentary that aims to shine a light on the challenges faced by individuals living with Parkinson’s. This documentary will be shared with healthcare practitioners and researchers to provide them with a deeper understanding of the daily struggles and triumphs of those with Parkinson’s.
What to Expect
Interviews will be conducted in small groups and individually by Martha Carlin of Martha’s Quest, and Lisa Szymanski of Resolve Parkinson’s. Let your voice be heard and contribute to shaping a better future for Parkinson’s patients.
News & Insights
The American Medical Association writes a series entitled, What Doctors Wish Patients Knew™. In the January 2025 installment, Isaac Goldszer,
