Privacy Policy

This Privacy Policy (“Policy”) of Resolve Parkinson’s (“our,” “us,” or “we”), applies to each individual from whom we collect personal information (“you” or “your”).

Personal information means information that we can use to identify or contact you, which can include health and other information you submit when you use our website, https://www.resolveparkinsons.org/ and other websites that link to this; your offline interactions with us, including when you connect with us via telephone, at our events, and through our social media networks (collectively, the “Website”). We may update this Policy from time to time, so please review this Policy periodically.

This Policy relates to our Terms of Use, which incorporate this Policy.

1. Purpose

We are a nonprofit dedicated to using knowledge to bring about systemic change in how Parkinson’s is both identified and treated. This Policy is meant to inform you about how we may collect, use, and share information about you. The information you provide allows us to help you on a more personal level. Harnessing this information has the potential to lead to breakthroughs in Parkinson’s disease research.

2. Our Notices to You About What We Collect and How We Might Share It

We may obtain personal information about you and the types of personal information we obtain include:

• Information and content you post: When you share your experience and stories with us, we may collect information such as your name, address, age, gender, username, email, employment, pictures and other personal information you voluntarily disclose. We may also collect audio or visual content that you share with us, such as photos, videos, or recordings you choose to share your story.
• Information you provide offline: You may also provide us with information in person and offline. For example, we may collect information about you when you volunteer at one of our in-person events or when you send information to us by mail.
• Information when you make a donation: If you choose to make a donation to us, whether by telephone, postal mail, or this website, we may obtain additional information in connection with your donation, including your payment information (such as credit or debit card or bank account number).
• Sensitive information: While we do not require it or ask for it, you may voluntarily provide us health information when you share stories about your experiences with Parkinson’s Disease.
• Network and Website Interaction: Through your activities on the Website, including its social media channels, we may collect information about your internet and other electronic network activity information, including IP address, browsing history, search history, and information regarding your interactions with our Website and/or social media channels.

3. Sources of Personal Information

We may obtain your personal information from the following sources:

• You: You may send us your personal information when you use our products, services, or Website. For example, you may provide your personal information to us by phone, email, text message, online form submission, in-person discussion, or other communications.
• Third Parties: We may collect personal information from whom we receive personal information from or an individual at your organization who is authorized to provide us with your personal information.
• Your Devices: We may pull your personal information from your devices and browsers through Trackers, as described in the Tracking Technologies section.
• Public Sources: To the extent permitted by applicable law, we may collect your personal information from publicly accessible sources of information, including publishers of public records, news media, and online content.

4. How We Collect Personal Information

• Personal Information You Voluntarily Provide: We collect personal information that you voluntarily provide when you visit or use the  Website, make a donation or register for our interactive tools and services, including any applications we release and social media channels. We may also collect information from you when you sign up for our newsletters or other communications or when you participate in our online surveys and community forums.
• Personal Information Automatically Collected: Depending upon your location, our Website may use tracking technologies to automatically collect or process certain types of personal information. These technologies may be out of view or beneath your screen. For more details, please see the Tracking Technologies section.

5. Types of People or Entities That May Receive Your Personal Information

We may share the information we collect from and about you within our organization and with certain third parties for the purpose of fulfilling our mission or providing services to you or our users. For example, we may share your information with:

• Credit card processing companies, to process your payments and donations.
• Service providers that provide us with certain services or perform services on our behalf, such as professional advisors, business support, web hosting providers, information technology providers, payment processors, event service providers, direct mail and email distribution providers, analytics and market research services, among others. These service providers are only permitted to use your personal information to help us offer our services to you and not for any other purpose.
• Other third parties to comply with legal requirements such as the demands of applicable subpoenas and court orders; to verify or enforce our terms of use, our other rights, or other applicable policies; to address fraud, security or technical issues; to respond to an emergency; or otherwise to protect the rights, property or security of our customers or third parties.
• Any third party entity that acquires or is merged with as part of a merger, acquisition, consolidation, restructuring, the sale of substantially all of our shares and/or assets, in connection with bankruptcy proceedings, reorganization, or any other change of control.

6. Purposes

We may use and disclose the personal information we obtain from you for the following purposes:

• Services: for performing services on our behalf, including sending you materials, information, or other communications that may be of interest to you, maintaining or servicing accounts, providing customer service or providing similar services on our behalf. 
• Short-Term Use: for short-term, transient use, including non-personalized advertising shown as part of your current interaction with us, provided that your personal information is not disclosed to another third party and is not used to build a profile about you or otherwise alter your experience outside the current interaction with us.
• Quality and Safety: to undertake activities to verify or maintain the quality or safety of a service provided by us or to improve, upgrade, or enhance the service provided by us.
• Security: to help to ensure security and integrity to the extent the use of your personal information is reasonably necessary and proportionate for these purposes.
• Incident Investigation: for preventing, detecting, and investigating security incidents that compromise the availability, authenticity, integrity, or confidentiality of stored or transmitted personal information. 
• Resistance to Illegal Action: for resisting malicious, deceptive, fraudulent, or illegal actions directed at us and to prosecute those responsible for those actions.
• Physical Safety: for ensuring the physical safety of natural persons. 
• Auditing: for auditing related to website activities and traffic, and auditing compliance with this specification and other standards.
• Debugging: for debugging to identify and repair errors that impair existing intended functionality.
• Internal Research: for undertaking internal research for technological development and demonstration.
• Additional Operational Purposes: for any other purpose described in any notice we send to you or provide to you in advance, provided that our use of your personal information is necessary and proportionate to achieve the purpose for which we collected or processed it, or for another purpose that is compatible with the context in which we collected your personal information.

7. Explanation of Your Personal Information Rights

Consistent with applicable law, some states provide their state residents with additional rights. To the extent that we are subject to the applicable laws, you may have the following rights:

• Right to Know. You have the right to request that we disclose the following to you, as provided under applicable law: 
  • Confirmation – whether we are collecting, using, storing, disclosing, analyzing, deleting, modifying, or otherwise processing your personal information. 
  • Categories of Personal Information – the categories of personal information that we have collected about you. 
  • Categories of Receivers – the categories of third parties to whom we have disclosed your personal information.  
  • Categories of Sources – the categories of sources from which we have collected your personal information. 
  • Categories of Sales/Sharing – the categories of any of your personal information that we have sold to third parties or “shared” with third parties.  
  • Categories of Third Parties Involved in Sales/Sharing – the categories of any third parties to whom we have sold or with whom we have “shared” your personal information. 
  • Purpose – our business or commercial purpose for doing any of the following activities: collecting your personal information, selling it, “sharing” it, or processing it for targeted advertising. 
  • Portability/Access – the specific pieces of personal information that we have collected about you, which may be requested in a portable, and to the extent technically feasible, readily usable format that enables you to transmit the personal information to another entity without hindrance.
• Right to Request Deletion. You have the right to request that we delete your personal information that we have collected, as provided under applicable law.
• Right to Request Correction. You have the right to request that we correct any inaccurate personal information about you that we maintain, as provided under applicable law.
• Right to Opt Out and Withdraw Consent. You have the right, at any time, to take the following steps, as provided under applicable law: 
  • Direct any business not to sell your personal information. 
  • Direct any business not to “share” or process your personal information for targeted advertising purposes. 
  • Opt out of or otherwise withdraw your consent for any processing of your sensitive personal information. 
  • Opt out of automated profiling for advertising.  
  • Opt out of automated profiling conducted in furtherance of decisions that produce legal or similarly significant effects concerning you. 
  • Opt out of the collection of your personal information through operation of a voice recognition feature or facial recognition feature.

• Right to Non-Discrimination and Non-Retaliation. You have the right to be free of discrimination and retaliation related to your exercise of any of your rights provided in this Policy or otherwise under applicable law, including your exercise of these rights in your role as an applicant for an education program, a job applicant, a student, an employee, or an independent contractor.
• Right to Authorize an Agent. To exercise your rights described above, you have the right to authorize another person to provide us with your requests.

8. Methods to Submit Requests and Appeals

To exercise your rights described above or within the Our Notices Regarding Certain Jurisdictions section, you may provide your request or appeal to us by contacting us. 

For certain requests, we may require identity verification in accordance with applicable law. 

9. Our Notices Regarding Certain Jurisdictions

9.1 General. Unless you tell us otherwise, when you provide your information, we will use your information as allowed by law to deliver the programs you are involved with and in furtherance of our mission. We recognize we must comply with all applicable U.S. laws and the laws of countries in which we have a business presence.

9.2 United States Federal Laws. We may enter into a contract with you (or engage in a transaction with you) that involves our receipt of information from you that is governed or regulated by federal laws and regulations of the United States. Nothing in this Policy will eliminate or decrease any of our obligations under these federal laws. In the event of a conflict between any part of this Policy and any requirements of these federal laws, the requirements of the federal laws will control.  

9.3 Europe. If we expand our activities to bring us within the scope of the European General Data Protection Regulation ((EU) 2016/679)) (the “GDPR”), we provide data subjects under the GDPR with this Policy, including the following notices:

• Legal Bases for Processing. We may process your personal information as follows: 

• • Upon your consent for us to process your personal information for one or more specific purposes.
  • As necessary for us to process your personal information to perform a contract to which you are a party or to take steps at your request before entering into a contract.
  • As necessary for us to process your personal information to comply with a legal obligation to which we are subject.
  • As necessary for us to process your personal information for purposes of our legitimate interests pursued by us or a third party (which includes our Business Purposes), except where the interests are overridden by your interests or fundamental rights and freedoms require protection of personal information, particularly if you are a child.
  • For another necessity that arises for which such processing is permitted under the GDPR. 

• Supervisory Authority. If you have any concerns regarding our processing of your personal information, the GDPR provides you with the right to lodge a complaint with the supervisory authority established for your location in the European Economic Area, the United Kingdom, or Switzerland. 

10. Tracking Technologies

• Trackers. There are software-related technologies that involve the use of trackers to monitor or track activity (“Trackers”). Some Trackers include small data files (e.g., cookies) that websites may store in the web browser of your device, such as your computer or smartphone. Other types of Trackers include small, transparent images (e.g., pixels) that may be embedded within the graphics of a webpage, mobile app screen, or email.
• Essential Trackers. Depending upon your location and in accordance with applicable law, we may use essential Trackers, such as essential cookies (sometimes referred to as “necessary cookies” or “strictly necessary cookies”), for one or more of the following purposes: (a) to perform a contract to which you are a party; (b) to take steps at your request before entering into a contract; and (c) to process your personal information as necessary for purposes of our legitimate interests. These purposes may include, for example, our use of essential Trackers for the following functions:
  • To save pieces of information you have entered during online transactions at our Website, such as items you have added to a shopping cart, as well as names, addresses, usernames, passwords, and other text you have entered into forms on our Website.  
  • To verify whether you are logged-in to an account on our Website for authentication and security purposes.
  • To operate with adequate security, speed, and electronic performance. 
• Non-Essential Trackers. Also, depending upon your location, we may use non-essential Trackers, such as non-essential cookies (sometimes referred to as “marketing cookies,” “advertising cookies,” “functional cookies,” “performance cookies,” “targeting cookies,” “analytics cookies,” or “customization cookies”). We may use these non-essential Trackers for our Operational Purposes, including studying how you interact with our Website and spend time viewing particular content on our Website. For example, we may use non-essential Trackers to record your browsing history, such as the particular buttons you have clicked and the particular webpages you have visited. This helps us personalize your experience, improve our Website, enhance our offerings, and identify new offerings that may be in demand. 
• How to Change Tracker Settings. There are several ways for you to stop or limit our use of certain types of Trackers. If there is a hyperlink on our Website relating to your privacy choices, privacy preferences, or cookie settings, you may use the hyperlink to disable certain types of Trackers. Also, you may use your web browser’s settings to disable, limit, or delete certain Trackers. Please keep in mind, however, that our Website may not work fully or properly if you disable, limit, or delete Trackers. 
• Our Territorial Settings. We may configure certain Trackers so that they do not track or monitor individuals in certain jurisdictions or territories.

11. Your Additional Consents

11.1 Sensitive Personal Information. When we ask for certain types of sensitive information—such as health information—we will tell you how we intend to use and disclose that information. Please do not use our Website to provide your sensitive personal information to us unless we expressly ask you to do so. If you provide us with your sensitive personal information, doing so will be your consent for our receipt, use, and processing of your sensitive personal information for our Operational Purposes in accordance with applicable law.

11.2 Communications. If you use our Website to provide us with any communications (including your conversations, messages, emails, mail, or reports) doing so will be your consent for us to carry out the following steps for our Operational Purposes in accordance with applicable law: 

• receive, use, and process the communications;
• record the communications; and
• disclose the communications to our affiliates and the third parties described in the section, Categories of Receivers of Personal Information.

11.3 Name/Image/Likeness/Story. Because of the nature of our website and services, we welcome the stories and experiences contributed by the community.  If you share your story, including your name or the names of other living people, with us during your interactions with us, our website or through our social media channels or other communications channels with us, you consent to our use of your name, and (if you provide it) your photo or image and you represent that you have the consent to use the names and any images of other people that may also be named in your submission(s) to us (“Personal Story Rights”).  We agree not to use your Personal Story Rights other than to help promote the mission of Resolve Parkinson’s. If you wish for us to remove your name or your Personal Story from our materials at any time just contact us.

11.4 Other. By using our Website, you confirm that you have fully reviewed this Policy, and you consent to our activities and practices as described in this Policy (including our use of Trackers) in accordance with applicable law.

12. Miscellaneous

12.1 Leaving Our Website. Our Website may provide buttons or hyperlinks that enable you to leave our Website and connect with platforms controlled by third parties, such as third-party websites, social media platforms, and mobile apps. By clicking and using these buttons and hyperlinks, you may leave our Website, which may enable the applicable third party to collect, use, and disclose your personal information. We do not control these third-party platforms, and they are not part of our Website. We encourage you to review the privacy policies of these third-party platforms and exercise caution before providing your personal information to them.

12.2 Transfers of Personal Information to Non-United States Territories. Unless prohibited by applicable laws or our contractual obligations, we may transfer your personal information from the United States to any other country, where it may be stored and processed for the uses described in this Policy.

12.3 Deidentified Information. With respect to any deidentified information derived from your personal information, we retain the right to collect, process, use, store, sell, disclose, and distribute the deidentified information in accordance with applicable laws. If we exercise this right, we will maintain and use the deidentified information and will not attempt to reidentify it, with the exception that we may reidentify the information only to determine whether our deidentification processes satisfy the requirements of applicable laws. 

12.4 User Terms. If we collect personal information through any web portal or mobile app that we own or operate, and the portal or app provides a hyperlink to any user terms (e.g., end-user terms or license terms), please carefully review the user terms to understand how the portal or app collects and uses personal information. 

12.5 Age.  Our website and services are not intended for children or anyone under the age of 18. We do not knowingly collect or solicit personal information from children under the age of 13. To the extent we have collected any personal information from an individual under 16, that personal information was collected with the consent of that child’s parent or guardian. 

12.6 Law Enforcement and Legal Claims. Nothing in this Policy will prevent or restrict us from: 

• Complying with federal, state, or local laws, or complying with a court order or subpoena to provide information.
• Complying with a civil, criminal, or regulatory inquiry, investigation, subpoena, or summons by federal, state, or local authorities. 
• Cooperating with law enforcement agencies concerning conduct or activity that we or our affiliates or associates reasonably and in good faith believe may violate federal, state, or local law. 
• Cooperating with a government agency request for emergency access to your personal information if a natural person is at risk or in danger of death or serious physical injury, provided that: (a) the request is approved by a high-ranking agency officer for emergency access to your personal information; (b) the request is based on the agency’s good faith determination that it has a lawful basis to access the information on a nonemergency basis; and (c) the agency agrees to petition a court for an appropriate order within three days and to destroy the information if that order is not granted. 

• Exercising or defending legal claims. 

• Using or disclosing your personal information for the purposes listed above.

Last updated: June 27, 2026